Dravet Syndrome Seizure Treatment Options People with Dravet Syndrome often experience a variety of different types of seizures, including prolonged ones. To help, there's Fintepla, a medication approved to treat seizures caused by Dravet syndrome. Fintepla Fintepla works by targeting the brain’s electrical activity, helping to reduce the number and severity of seizures. Doctors prescribe Fintepla when other medications haven’t been effective in controlling seizures. This treatment has shown positive results in many patients, making it an essential option for managing Dravet syndrome. Medications for Dravet Syndrome Seizures Clobazam: This drug is often prescribed alongside other treatments. It helps to control seizures by calming the brain and reducing electrical activity. Valproate: This medication is used to control a variety of seizure types. However, it is not always the best choice for younger children due to its potential side effects. Topiramate: Used to prevent seizures, this medication works by affecting the brain's electrical signals. [youmaylike] Doctors may need to try different combinations of medications to find what works best for the individual. It’s important for patients and their families to closely monitor the medications and any side effects. Dietary Approaches: The Ketogenic Diet For some individuals with Dravet Syndrome, medications may not be enough to control seizures. In these cases, dietary treatments, such as the ketogenic diet, can be very helpful. The ketogenic diet is high in fats and low in carbohydrates, and it forces the body to use fat for energy instead of carbohydrates. This change in metabolism can help reduce seizures. The ketogenic diet should only be followed under the supervision of a doctor or dietitian, as it requires careful planning to ensure that the person gets the proper nutrition. Some children with Dravet Syndrome may experience a significant reduction in seizures after starting the ketogenic diet. Vagus Nerve Stimulation (VNS) Vagus Nerve Stimulation (VNS) is another treatment option for Dravet Syndrome. This therapy involves implanting a small device under the skin in the chest. The device sends electrical signals to the brain through the vagus nerve, which can help reduce the frequency and severity of seizures. The device can be programmed to give a burst of electrical stimulation when a seizure is detected, helping to stop the seizure or make it less severe. VNS is often considered when medications and diet do not provide enough seizure control. It is typically used in combination with other treatments. Surgical Options In some rare cases, surgery may be an option for treating Dravet Syndrome. If seizures are only coming from one part of the brain and medications do not help, surgery may be performed to remove that part of the brain. This surgery is called a lobectomy or hemispherectomy, depending on the area of the brain involved. Surgical options are not suitable for everyone, and doctors will carefully evaluate the risks and benefits before recommending surgery. Supportive Therapies While medications and other treatments are important for managing seizures, other therapies can be helpful in improving quality of life for individuals with Dravet Syndrome. These may include: Physical therapy: This helps improve mobility and strength, which can be affected by seizures. Occupational therapy: Helps individuals learn daily skills to live as independently as possible. Speech therapy: Helps improve communication skills, which may be affected by seizures. Ongoing Monitoring and Care Managing Dravet Syndrome requires ongoing care. It is essential for individuals with the condition to have regular check-ups with their doctor to monitor their progress and adjust treatment plans as needed. Seizures can sometimes change over time, and it is important to stay flexible with treatment options. The Best Approaches to Seizure Control While Dravet Syndrome can be challenging, there are many treatment options available. With the right combination of medications, diet, therapy and support, people with Dravet Syndrome can lead fuller lives. It is important to work closely with healthcare providers to find the best treatment plan for each individual.
Ankylosing Spondylitis Diet
What you eat has a direct effect on your health. While small changes won't cure you of anything, it may help manage flare-ups. Those suffering from ankylosing spondylitis may experience a reduction in symptoms by changing their diet a bit. So, let’s take a deeper look at ankylosing spondylitis diet recommendations.
What is Ankylosing Spondylitis?
Ankylosing spondylitis is a disease that impacts your spine. The body exhibits an inflammatory response that, over time, causes your vertebrae to fuse. Depending on the exact vertebrate that becomes fused, patients experience different types (and severities) of symptoms.
For example, the fusion of the lower vertebrate may make it difficult to bend over or cause stiffness and back pain. However, it becomes more severe when vertebrae are fused near the ribs. Patients suffering from this particular type may have problems breathing over time.
Early Signs and Symptoms
Pain and stiffness of the spine are some early indications of ankylosing spondylitis. As time goes on, symptoms will worsen. Sometimes, the worsening (or experience of) early symptoms comes and goes in waves.
While this may happen anywhere at the spine, the most commonly impacted areas are located:
- Between the end of your spine and pelvis
- At the lower back
- Areas where tendons and ligaments attach to
- Near your shoulders
- Near your hips
Many patients experience the worst symptoms after periods of inactivity. While no one knows the exact cause of the disease, there is evidence to suggest that there is a genetic basis to a diagnosis. The disease has a wide range of complications that span beyond direct, physical constraints.
Such possible complications include:
- Eye inflammation
- Compression fractures
- Problems with your heart
Doctors come to a diagnosis through imaging techniques, laboratory results, and physical examinations. Once they officially diagnose your condition, they can assess which steps should be taken next.
The Ideal Diet for Ankylosing Spondylitis
Many experts recommend a specialized diet to target the symptoms of ankylosing spondylitis. It is important to highlight that these are not meant to replace other interventions in many cases, but help enhance the quality of life.
This diet suggests eating a balanced diet with foods rich in antioxidants, calcium, and omega-3 fatty acids. Guidelines also warn that patients should cut back on substances such as fat, sugar, alcohol, and salt. When diets alone are not enough, talk to a doctor about which supplements are right for you.
Maintaining a healthy weight also helps manage symptoms, so it is important to try to stay fit and eat in moderation.
Foods to eat to manage ankylosing spondylitis and maintain a healthy weight include:
- Fruits
- Vegetables
- Whole grains
- Fatty fish (like salmon or tuna)
- Walnuts
- Chia seeds
- Almonds
- Broccoli
- Chinese cabbage
- Kale
Ankylosing Spondylitis Treatments
Getting a diagnosis means a doctor can start designing a treatment plan. Treatments help relieve symptom pain and discomfort and delay complications. Treatments are most effective when they are performed earliest. If left untreated, the disease may cause irreversible joint damage.
Medications
Pharmaceutical intervention is a popular and effective method for treating different diseases. One particularly popular class of drugs is nonsteroidal anti-inflammatory drugs (NSAIDs), like naproxen or indomethacin. These medications treat ankylosing spondylitis by reducing inflammation, which causes the symptoms and damage.
However, when not effective, doctors may also suggest other drugs such as TNF blockers. There are currently five official approved TNF blockers for ankylosing spondylitis treatment, including Humira, Cimzia, Enbrel, Simponi, and Remicade.
Surgery
Surgeries are only necessary in extreme cases. However, if you suffer from extreme damage, you may need to have a damaged joint, such as a hip, replaced.
Physical Therapy
Learning how to stay active and maintaining movement and flexibility is important. It helps with the treatment and enhances your prognosis. A physical therapist can design an effective lesson plan for you to thrive off of.
Lifestyle Changes
Many different lifestyle changes positively influence patients and treatment outcomes. This includes many things such as staying happy, treating stiff joints when swollen with heat/ice, and avoiding unhealthy habits, like smoking. Practicing good posture and regular exercise is a great way to stay healthy – regardless of your diagnosis. There are also many different dietary changes you may want to consider.
Keep in Mind
While the internet is a useful tool to explore different options, ultimately, medical advice may only be provided by a licensed care physician. Always contact your doctor for expert advice and recommendations as they have the medical training and education to best serve their patients. Even “holistic” approaches, such supplements or dietary changes, are worth discussing with your doctor if you suffer from any medical conditions.