Dravet Syndrome Seizure Treatment Options People with Dravet Syndrome often experience a variety of different types of seizures, including prolonged ones. To help, there's Fintepla, a medication approved to treat seizures caused by Dravet syndrome. Fintepla Fintepla works by targeting the brain’s electrical activity, helping to reduce the number and severity of seizures. Doctors prescribe Fintepla when other medications haven’t been effective in controlling seizures. This treatment has shown positive results in many patients, making it an essential option for managing Dravet syndrome. Medications for Dravet Syndrome Seizures Clobazam: This drug is often prescribed alongside other treatments. It helps to control seizures by calming the brain and reducing electrical activity. Valproate: This medication is used to control a variety of seizure types. However, it is not always the best choice for younger children due to its potential side effects. Topiramate: Used to prevent seizures, this medication works by affecting the brain's electrical signals. [youmaylike] Doctors may need to try different combinations of medications to find what works best for the individual. It’s important for patients and their families to closely monitor the medications and any side effects. Dietary Approaches: The Ketogenic Diet For some individuals with Dravet Syndrome, medications may not be enough to control seizures. In these cases, dietary treatments, such as the ketogenic diet, can be very helpful. The ketogenic diet is high in fats and low in carbohydrates, and it forces the body to use fat for energy instead of carbohydrates. This change in metabolism can help reduce seizures. The ketogenic diet should only be followed under the supervision of a doctor or dietitian, as it requires careful planning to ensure that the person gets the proper nutrition. Some children with Dravet Syndrome may experience a significant reduction in seizures after starting the ketogenic diet. Vagus Nerve Stimulation (VNS) Vagus Nerve Stimulation (VNS) is another treatment option for Dravet Syndrome. This therapy involves implanting a small device under the skin in the chest. The device sends electrical signals to the brain through the vagus nerve, which can help reduce the frequency and severity of seizures. The device can be programmed to give a burst of electrical stimulation when a seizure is detected, helping to stop the seizure or make it less severe. VNS is often considered when medications and diet do not provide enough seizure control. It is typically used in combination with other treatments. Surgical Options In some rare cases, surgery may be an option for treating Dravet Syndrome. If seizures are only coming from one part of the brain and medications do not help, surgery may be performed to remove that part of the brain. This surgery is called a lobectomy or hemispherectomy, depending on the area of the brain involved. Surgical options are not suitable for everyone, and doctors will carefully evaluate the risks and benefits before recommending surgery. Supportive Therapies While medications and other treatments are important for managing seizures, other therapies can be helpful in improving quality of life for individuals with Dravet Syndrome. These may include: Physical therapy: This helps improve mobility and strength, which can be affected by seizures. Occupational therapy: Helps individuals learn daily skills to live as independently as possible. Speech therapy: Helps improve communication skills, which may be affected by seizures. Ongoing Monitoring and Care Managing Dravet Syndrome requires ongoing care. It is essential for individuals with the condition to have regular check-ups with their doctor to monitor their progress and adjust treatment plans as needed. Seizures can sometimes change over time, and it is important to stay flexible with treatment options. The Best Approaches to Seizure Control While Dravet Syndrome can be challenging, there are many treatment options available. With the right combination of medications, diet, therapy and support, people with Dravet Syndrome can lead fuller lives. It is important to work closely with healthcare providers to find the best treatment plan for each individual.
Interstitial Cystitis Diet
If you or your loved ones have never had any issues with your bladder, you might not be aware of what interstitial cystitis is. To simplify the condition, interstitial cystitis is a chronic condition that causes pain, specifically in the bladder and pelvis. While sometimes the pain is manageable, it can become severe. Because of this, the condition is often added as a symptom of diseases marked under the umbrella term of painful bladder syndrome. An interstitial cystitis diet may be able to relieve some symptoms.
Physical stress is the leading cause of interstitial cystitis. Even physical exercise, psychological stress, or stomach pangs during your menstrual cycle are enough to trigger a flare.
What Does an Interstitial Cystitis Flare Feel Like?
Interstitial cystitis (IC) flares are not like your familiar pangs of pain.
According to a study conducted by the Interstitial Cystitis Association, out of the 750 respondents, 19% reported periods of extreme pain that fluctuated with increased urination during a few days or even weeks. About 12% reported a sudden increase in pain and symptom intensity.
How Do You Avoid IC Flares?
What you eat and drink makes a huge difference in how intense an IC flare is and whether it is triggered.
The following are different ingredients and products that aggravate a person’s IC:
- Soda.
- Alcohol.
- Coffee.
- Tomatoes.
- Spicy food.
- Hot food.
- Chocolate.
- Citrus drinks or juices.
- Monosodium glutamate (MSG).
- Caffeinated beverages.
- High-acid food.
Although these ingredients and products are relatively common, this does not mean you have to keep living with IC. There are plenty of other products and foods you can have to avoid IC flares, and here are some things you should stock up on for your new and improved diet.
1. Green Tea
Green tea is the perfect solution. Most green teas such as berry, chamomile and mint offer little to no caffeine content. Not to mention that these teas are healthier for your diet and body. These teas offer energy, soothe the stomach and keep your body nourished while alleviating any pain from your bladder.
2. Low-Fat Yogurt
Low-fat or fat-free dairy should be your go-to.
If you eat yogurt as a snack, always go for an option without sugar or any artificial sweeteners. Plain yogurt works well in a pinch, but if you like your sweets, try to choose sweet yogurts that offer non-citrusy flavors, like a berry.
3. Go Whole
Moving away from citrus can seem like a tragedy for any fruit lover. But it doesn’t have to be.
If you like fruit, try unsweetened fresh fruits instead of juices. Even frozen or canned fruits are fine, and your goal should be using whole fruits instead of juices.
If needed, drink 100% fruit juices (preferably juice you have made yourself), and choose options that are vitamin-C rich, so your body gets that kick of energy it needs.
4. Healthy Meat Alternatives and Cooking Methods
We all love our fair share of meat. But, if you want to avoid IC flares, use this moment to try meatless options. There are so many brands that offer meatless food that doesn’t even taste like a non-meat product. Experiment with plant-based products and make some of your favorite meals. Burgers, pizzas, sandwiches and lasagna — there is a laundry list of meatless food you can make with vegetarian options.
But if you don’t want to give up your meat habit any time soon, make healthier choices. Instead of having fried meats, bake the meat. Roasting, grilling and broiling are also good options. Trim away visible fat and stick with leaner meats. If you have chicken or turkey, remove the skin to save yourself any pain.
5. Limit Your Greases
Ingredients like oils, margarine, butter, mayonnaise and salad dressings are essential for our diet.
But if you want to live without pain, you may need to limit these ingredients substantially. Again, plant-based ingredients are an option. Olive oil, canola oil, olive butter, or butter made from buttermilk are also delicious. You have to stay away from greasy food and pick trans-fat-free ingredients.
In Conclusion
This is just the beginning of a long list of ways to improve your chances against IC. Hopefully, with the above list, you will get started on leading your life the healthy way you deserve.